For people whose skin doesn’t work – we do.
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.
DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.
We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.
Read more about our work and the principles that govern it in our Research and Care strategy.